My Macular and Me

May 15 2024
My Macular and Me Podcast artwork

Twice a month, delve into the world of macular disease with the Macular Society. Join us as we hear from eye care professionals, providing expert insight on the latest developments in research and evolving treatments. Listen as we also share first-hand stories and explore the support available for those living with sight loss. Episodes are released on the first and third Thursday of each month. For more information and additional support visit: https://www.macularsociety.org/ 

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Latest updates in myopic macular degeneration

May 15 2024 53 mins  
Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, joins our My Macular and Me podcast to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research into the condition on how to slow myopia progression in childhood and adolescence.The M

Bitesize Benefits: Attendance Allowance application and decision

May 01 2024 28 mins  
Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial support for those living with macular disease.This episode is our final episode focused on Attendance Allowance. In this episode we discuss the application itself, as

Bitesize Benefits: What is Attendance Allowance and how do I apply?

Apr 17 2024 42 mins  
Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial support for those living with macular disease.This episode is part one of two, focused on Attendance Allowance. In this episode we discuss what the benefit is and how

Trains, planes and automobiles

Apr 03 2024 44 mins  
For most, taking public transport is done without much thought or stress. But, sight loss can have a huge impact on the relative ease with which most people travel. For this My Macular and Me podcast we are joined by Pete Lock, national habilitation lead at Guide Dogs, who shares his own experiences of travelling across the UK on public transport. He will also discuss tips and stra

Bitesize Benefits: Spring Budget

Mar 20 2024 31 mins  
Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our new mini series Bitesize Benefits will cover a range of topics related to financial support for those living with macular disease.Join us as we look at the recent Spring Budget announcement and explore what these updates could mean for those livin

Understanding gene mutations in childhood eye disease

Mar 06 2024 39 mins  
Researcher Roly Megaw, a clinical lecturer and honorary consultant ophthalmologist from the University of Edinburgh and West Lothian joins us for this episode of the podcast.Roly will be shedding light on the devastating impact of RPGR gene mutations, which can cause macular and cone rod dystrophies. Join us as he unveils discoveries from his joint Macular Society and Retina UK-fun

Bitesize Benefits: PIP assessment and decision

Feb 14 2024 33 mins  
Join us for our final episode on Personal Independence Payment (PIP) in our Bitesize Benefits series. In this episode we explore the final stages of the application ,unravelling the assessment process and possible outcomes. This episode is the final in three, focused on Personal Independence Payment (PIP). For more information on benefits available to help those living with macular

Bitesize Benefits: The ins and outs of a PIP application

Jan 31 2024 37 mins  
Join us for the second episode in our Bitesize Benefits series as we continue our exploration of Personal Independence Payment (PIP). We take a look at the application process and uncover valuable tips to help you with your claim. This episode is the second of three, focused on Personal Independence Payment (PIP). Join us as we explore what PIP actually is, who is entitled to it, a

Bitesize Benefits: What is PIP and how do I apply?

Jan 17 2024 24 mins  
Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our new mini series Bitesize Benefits will cover a range of topics related to financial support for those living with macular disease. This episode is the first of three, focused on Personal Independence Payment (PIP). Join us as we explore what PIP a

What causes photopsia and photophobia in patients with Stargardt?

Jan 03 2024 44 mins  
Flashing lights in vision (photopsia) or discomfort due to bright light or glare (photophobia) is often experienced by patients with Stargardt. However, little is understood about what causes these symptoms, their prevalence or the impact they can have on people’s lives. Omar Mahroo, consultant ophthalmologist and professor of retinal neuroscience at University College London, an